Support Groups
Understanding. Support. Encouragement.
Join the GliaConnect Community!
Caregivers.
Next Meeting: Saturday, November 22nd, 2025
Time: 4 pm EST
Virtual via Google Meet: https://meet.google.com/diz-kupd-oqy
What: Our support groups are open to all caregivers of patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
Asymptomatic Carriers.
Next Meeting: Monday, November 17th, 2025
Time: 8:00 pm EST
Virtual via Google Meet: meet.google.com/zfp-odfr-eyy
What: Our asymptomatic carrier support groups are open to all patients diagnosed with a CSF1R mutation that are not experiencing symptoms. This is a place to discuss all topics from the unique perspective of an asymptomatic carrier.
Patients.
Next Meeting: Saturday, November 8th, 2025
Time: 4 pm EST
Virtual via Google Meet: https://meet.google.com/koa-qond-odu
What: Our support groups are open to all patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
