Support Groups
Understanding. Support. Encouragement.
Join the GliaConnect Community!
Caregivers.
Next Meeting: Saturday, October 25th, 2025
Time: 4 pm EST
Virtual via Google Meet: https://meet.google.com/hwk-ghkt-jkm
What: Our support groups are open to all caregivers of patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
Asymptomatic Carriers.
Next Meeting: Thursday, October 2nd, 2025
Time: 3:30 pm EST
Virtual via Google Meet: https://meet.google.com/hov-rzti-ymj
What: Our asymptomatic carrier support groups are open to all patients diagnosed with a CSF1R mutation that are not experiencing symptoms. This is a place to discuss all topics from the unique perspective of an asymptomatic carrier.
Patients.
Next Meeting: Saturday, October 11th, 2025
Time: 4 pm EST
Virtual via Google Meet: https://meet.google.com/hpv-mvsm-dhv
What: Our support groups are open to all patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
