Support Groups
Understanding. Support. Encouragement.
Join the GliaConnect Community!
Caregivers.
Next Meeting: Saturday, April 25th, 2026
Time: 11 am EST
Virtual via Google Meet: Click Here
What: Our support groups are open to all caregivers of patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
Asymptomatic Carriers.
Next Meeting: Monday, March 26th, 2026
Time: 3:30 pm EST
Virtual via Google Meet: Click Here
What: Our asymptomatic carrier support groups are open to all patients diagnosed with a CSF1R mutation that are not experiencing symptoms. This is a place to discuss all topics from the unique perspective of an asymptomatic carrier.
Patients.
Next Meeting: Saturday, April 11th, 2026
Time: 4 pm EST
Virtual via Google Meet: Click Here
What: Our support groups are open to all patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.
