Our Team

Staff

Erin Sullivan
Executive Director

Patient advocacy became personal for Erin Sullivan when her mom became ill with ALSP. Determined to bring good from her mother’s suffering, Erin has committed to advocating for others still living with rare brain diseases.  

She has a diverse background with a B.A. in Theology, experience in banking, program directing, coaching swimming, teaching lifeguarding, and homeschooling her 3 kids.  The leadership, problem solving, communication, and strategic planning skills necessary to do these jobs also makes her a strong patient advocate.

Jamie LaFleur, RN, BSN
Marketing Manager

Jamie brings an uncommon mix of healthcare expertise, creativity, and marketing strategy to GliaConnect. Over the past 15 years, she has worked as a registered nurse in the emergency department, pediatrics & home care, a brand designer and a marketing manager. Through her previous work, Jamie has developed a passion for patient advocacy and advancing research in the rare disease space.

Board of Trustees

  • Adam Smith

    PRESIDENT OF THE BOARD

  • Charles Kantaparn

    SECRETARY

  • Justin Day

    TREASURER

  • Dr. Yedda Li, MD, PhD

    TRUSTEE

  • Dr. John Carmichael, MD

    TRUSTEE

  • Kory Fay

    TRUSTEE

Our Board of Trustees oversees governance and ensures our strategy stays aligned with our charitable mission. Each trustee brings a unique blend of lived experience and professional expertise, helping us lead with purpose and impact.

Do you have expertise in an area which could be useful to GliaConnect? We’d love to have you on board. Email info@gliaconnect.org for further information.