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Patient & Caregiver Support Group

Join the GliaConnect Community. Our support groups are open to all patients diagnosed with ALSP/HLDS, BANDDOS, or Nasu-Hakola and their caregivers. We provide a safe place for encouragement, advice, questions and sharing worries, fears and concerns.

Link to Join: https://meet.google.com/whf-pnwc-fni

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September 4

Asymptomatic Carrier Support Group

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September 22

Asymptomatic Carrier Support Group